A LITTLE girl with a rare genetic condition is fighting for more research funding so that scientists can find a cure.

Enola Halleron-Clarke, five, of Larch Close, Feniscowles, Blackburn, is one of just 82 people in the UK with MPS Morquio, a genetic disorder meaning essential enzymes are not produced in her body.

The condition means sulphates which build bones and cartilage are not made, and cells and restricting bone growth.

Most people with the condition never grow to more than a metre tall, while their organs continue to grow normally, causing severe disability.

Enola had surgery in January to stop her spine becoming compressed, and has just had her “halo”, a head stabiliser worn to help the spine recover, removed.

On May 24, her mum Donna Halleron and 30 other friends and family members will climb Mount Snowdon to raise money for the MPS Society.

The charity funds research into all MPS conditions, and the team are hoping to raise £2,000 to help, as well as raise awareness of the condition.

More than £900 has already been donated by individuals and businesses.

Donna said: “Enola does not let anything stand in her way.

"Even when she was wearing the halo, she had an amazing character and presence.

"Enola has and will benefit from the support given to the society.

“I want to do everything and anything in my power to enable her to succeed and enjoy her life to the fullest and I would appreciate everyone’s support.

“The MPS Society funds and supports a number of projects which includes the potential treatment for the disease, enzyme replacement therapy, that is around the corner.”

To find out more about MPS Morquio, and donate to the appeal, visit the website below.