A LITTLE boy with a rare brain condition will recreate the walk his family made when he was first diagnosed.
Harrison Smith, from Oswaldtwistle, was diagnosed with a condition which results in water on his brain when he was just three weeks old.
He underwent surgery to relieve pressure inside his skull, after medical intervention that saved his life.
Without medical intervention, hydrocephalus can cause progressive enlargement of the head, convulsion, and mental disability. The condition was once routinely fatal until new surgical techniques were developed.
Although Harrison has shown signs of epilepsy and dyspaxia, cannot play contact sports, and is undergoing speech therapy, he attends a mainstream school and is coping well, his family said.
In 2009, to raise awareness of the condition the now six-year-old’s mum and dad, Dawn and Shaun, along with friends and family, walked 12.5-mile sponsored walk along the Leeds and Liverpool Canal, raising more than £4,000.
And on Saturday, Harrison will join family and friends, in aid of Shine.
Shaun will again dress as the charity’s mascot, Benny Bear.
The 44-year-old sales advisor at Elite Hardware in Accrington said: “Harrison has been doing what any other child will be doing, which is great.
“To be fair, he is doing pretty well.
“He started primary school at Moor End in Oswaldtwistle, which is a mainstream school.
“Harrison was only three weeks old when we had to hand him over to staff in theatre to have a shunt fitted, but it saved his life.
“We are trying to do our bit to help the charity that has helped us over the years.”
Shaun and Dawn, who have nine other children, Marc, Oliver, Kimberley, Joshua, Leo, Athena, Sophie, Mollie, and Sam, have raised around £12,500 over the past five years.
Donations can be made online at www.justgiving.com/steppingoutforshine