She has a face to capture a thousand hearts.

And today, the Lancashire Telegraph is appealing for the people of East Lancashire to show as much support as possible for Enola Halleron.

The 11-year-old has a rare disease with an average life expectancy of just 25 years without any medical intervention.

The drug Enola has been on costs almost £400,000 per year and for that reason, the people who decide which drugs are available on the NHS have not approved it.

It is supplied widely across Europe, even though it was pioneered in the UK, so why are we lagging so far behind?

The drug is licensed and deemed to be effective yet NICE haven’t thrown their whole weight behind it.

We need to find any way we can to help Enola and to prolong her life.

Her mother was going to Downing Street today to hand in letters of support written by her classmates.

We need to keep up the pressure on NHS England and ministers to make this drug available for free. There is no price on a life.

We hope they will see sense, consider the clear positive benefits and fund it so this vibrant and compelling child is given a better chance at life.