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Autism: Call for more support

2:50pm Thursday 7th February 2008

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Photograph of the Author By Camilla Sutcliffe »

AUTISTIC people are still feeling "isolated and ignored" because of a lack of dedicated services, a carer has claimed.

The National Autistic Society's 'I Exist' report said that 63% of adults with the condition did not have enough support to meet their needs.

But at Prospect House, a National Autistic Society residential home in Altham, people with Asperger's syndrome, a form of autism, are given the help they need to live an independent life.

Manager Amanda Ponton, who as worked at the home for 14 years, said programmes there worked to undo the damage of years of either inappropriate care, or complete lack of it.

She said: "Very often our clients have had a late diagnosis which meant they have either been without services at all, or have dipped in and out of them because no-one quite knows what support they need.

"Alternatively, people have been placed in what turns out to be an inappropriate placements in more general services, and come here when that placement has broken down.

"Autism is so complicated that usually the best care is geared entirely towards the condition, though we struggle nationally to get that specific funding, and that does cause problems - voluntary groups like us can only do so much."

Prospect House offers long-term and day care to support people into independence, teaching day-to-day life skills as well as ways of interacting with the public.

Mrs Ponton said: "The guys I deal with are all completely different, but the one thing they do have in common is difficulty in communication and interaction.

"Where in most people those skills develop naturally, an autistic person has to learn those skills, both the theory and the practice.

She said that more cash was needed for schemes like those at Prospect House to be set up by local authorities, geared entirely towards the condition, but added that understanding of autism had vastly improved.

She said: "Communication is getting better and referrals are becoming more appropriate to people's needs, but that doesn't mean we actually have the funding to get the extra services we need, and that's why the National Autistic Society is lobbying the government."

Your Say YourTelegraph

lemonghost, Darwen says...
11:22am Fri 8 Feb 08

my 35 year old son had aspergers we could not get anyone to diagnose him even though he had a case worker from the mental health team, it would have helped us if we had had support and information of your organisation sadly it is to late for my son who recently died aged 35 of ( un-known causes).But i do feel that autism should get more help and support from the government as a lot of people with the illness if helped can go on to lead normal or near normal lives.

Mum, Darwen says...
3:23pm Thu 7 Feb 08

My 11 year old son may have Aspergers, we are awaiting a firm diagnosis after me & my partner spent years desperately trying to get the school to help him - he leaves there this year and has had NO support/guidance or understanding from his school - apart from 3 remedial maths & english classes, He leaves this year to go to secondary education, I hope to the school I think has the better facilites for my child... of course it will be "mainstream" school so I dearly hope that he will not be spending the next 5 years struggling the way he has been. He is such a bright child, yet he finds it so difficult to translate this onto paper, he has no confidence in himself now after what the school has put him through. If there was a drop in centre or place like Prospect House in my area, I, and im sure others in the same position as myself would dearly love the support that the staff at Prospect house so selflessly give.

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CARER: Amanda Ponton CARER: Amanda Ponton

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