Oswaldtwistle family forced to move to Liverpool for disabled son's care

BONNY BATTLER  Two-year-old Carson was born with blue baby syndrome, a hole in his heart and had to battle through numerous life-saving operations.

BONNY BATTLER Two-year-old Carson was born with blue baby syndrome, a hole in his heart and had to battle through numerous life-saving operations.

First published in Health Lancashire Telegraph: Photograph of the Author by , Education reporter

THE FAMILY of a youngster who has battled to survive say they have been forced to move 40 miles to get support for their son’s disabilites.

Two-year-old Oswaldtwistle tot Carson Hartley was born with blue baby syndrome, a hole in his heart and had to battle through numerous life saving operations, which have destroyed his voicebox, meaning he will never speak.

His chronic lung condition, means he has to rely on machines to breathe for him and he uses a special wheelchair.

However his family claim Lancashire’s Social Services departments and Hyndburn Homes all told them he would be ineligible for help when he came home from hospital.

Carson needs round-the-clock care and a home with a downstairs bedroom and bathroom.

However parents Kirsty Harris and Damien Hartley claim they were told by their landlord Hyndburn Homes that Carson’s health problems were in the same minor category as asthma.

Carson’s parents, who have four other school age children, made the decision to move to Liverpool, near Alder Hey Hospital, where Carson is currently being cared for, a few weeks ago after a nine month battle to gain at-home support in Lancashire.

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They claim Carson would have been allowed home six months ago had a proper care package been put in place.

Now settled in Liverpool, they have already been granted a full time social worker and a care package meaning Carson could be home within a month.

Mum Kirsty Harris said: “We have no family support here and it’s been a massive upheaval changing schools for the kids.

“Nevertheless coming to Liverpool was the best thing we ever did and honestly, we should have done it when he was born.

“It was such a battle to get any help in Lancashire.

“The hospital said they’ve never had to put so many forms through for one little boy, only for them to get refused."

Lancashire County Council said the issue of adaptions up to £30,000 was the responsibility of Hyndburn Council.

Hyndburn Council was yesterday unavailable for comment.

Comments (9)

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12:33pm Tue 22 May 12

andrewsmith says...

LCC should be ashamed of themselves!
LCC should be ashamed of themselves! andrewsmith
  • Score: 0

6:06pm Tue 22 May 12

Sarah Mac says...

Such a shame the support for the little boy and his family just wasnt there. on a plus side, and speaking from personal experience, the care alder hey provide is outstanding and considering what this little lad has been through, he looks a happy little chap. bravo mum and dad- youre clearly doing a great job by your kids x
Such a shame the support for the little boy and his family just wasnt there. on a plus side, and speaking from personal experience, the care alder hey provide is outstanding and considering what this little lad has been through, he looks a happy little chap. bravo mum and dad- youre clearly doing a great job by your kids x Sarah Mac
  • Score: 0

2:49pm Wed 23 May 12

ratshowilikeit says...

This is sad for the little boy but do these parents have a job??with other 5kids of school age!! Life hard but you can't get everything given on a plate!!!!
This is sad for the little boy but do these parents have a job??with other 5kids of school age!! Life hard but you can't get everything given on a plate!!!! ratshowilikeit
  • Score: 0

10:13pm Wed 23 May 12

golazzo says...

Hyndburn Council hang your heads in shame. Bl**dy disgusting and someone high up should be brought to task over this matter
Hyndburn Council hang your heads in shame. Bl**dy disgusting and someone high up should be brought to task over this matter golazzo
  • Score: 0

10:49pm Wed 23 May 12

2 for 5p says...

andrewsmith wrote:
LCC should be ashamed of themselves!
Were do you want LCC or Hyndburn council to get the £30,000 from.
Extra council tax or do you want someone else to go without services.
[quote][p][bold]andrewsmith[/bold] wrote: LCC should be ashamed of themselves![/p][/quote]Were do you want LCC or Hyndburn council to get the £30,000 from. Extra council tax or do you want someone else to go without services. 2 for 5p
  • Score: 0

8:41pm Thu 24 May 12

Heretical says...

Care for this little boy is NOT 'getting it on a plate.'
It does not say anywhere whether either of the parents are working so there is reason to assume that no one is.
Up to 30k is an allowance that the Councils can spend on individuals who need specialist adaptions and it is not easy to get....
If the thought of someone having up to 30k to use for medical adaptation of a home is repugnant to you then I just hope that you and yours never need of it.
It is only given after close examination and in extreme circumstances and is not deducted from other services.
Care for this little boy is NOT 'getting it on a plate.' It does not say anywhere whether either of the parents are working so there is reason to assume that no one is. Up to 30k is an allowance that the Councils can spend on individuals who need specialist adaptions and it is not easy to get.... If the thought of someone having up to 30k to use for medical adaptation of a home is repugnant to you then I just hope that you and yours never need of it. It is only given after close examination and in extreme circumstances and is not deducted from other services. Heretical
  • Score: 0

8:55pm Thu 24 May 12

2 for 5p says...

However parents Kirsty Harris and Damien Hartley claim they were told by their landlord Hyndburn Homes that Carson’s health problems were in the same minor category as asthma.

Its there in black and white
and you just want council to hand out £30,000 Willie nilly Heritical
However parents Kirsty Harris and Damien Hartley claim they were told by their landlord Hyndburn Homes that Carson’s health problems were in the same minor category as asthma. Its there in black and white and you just want council to hand out £30,000 Willie nilly Heritical 2 for 5p
  • Score: 0

11:19pm Thu 24 May 12

lmhjones says...

2 for 5p wrote:
However parents Kirsty Harris and Damien Hartley claim they were told by their landlord Hyndburn Homes that Carson’s health problems were in the same minor category as asthma.

Its there in black and white
and you just want council to hand out £30,000 Willie nilly Heritical
His chronic lung condition, means he has to rely on machines to breathe for him and he uses a special wheelchair....someth
ing which neither you nor hyndburn homes understands obviously by the way i assume that you have never looked after anyone with complex disabilities? thought not. oh and before you talk about handing out money willy nilly google how DFG is assessed and for good measure look at the photo of the child and imagine he is yours complete with a machine to help him breathe.
[quote][p][bold]2 for 5p[/bold] wrote: However parents Kirsty Harris and Damien Hartley claim they were told by their landlord Hyndburn Homes that Carson’s health problems were in the same minor category as asthma. Its there in black and white and you just want council to hand out £30,000 Willie nilly Heritical[/p][/quote]His chronic lung condition, means he has to rely on machines to breathe for him and he uses a special wheelchair....someth ing which neither you nor hyndburn homes understands obviously by the way i assume that you have never looked after anyone with complex disabilities? thought not. oh and before you talk about handing out money willy nilly google how DFG is assessed and for good measure look at the photo of the child and imagine he is yours complete with a machine to help him breathe. lmhjones
  • Score: 0

11:38pm Thu 24 May 12

2 for 5p says...

DFG?
DFG? 2 for 5p
  • Score: 0

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