Lancashire TelegraphDoctors bid to cure 13-year-old Burnley girl’s crippling spine condition (From Lancashire Telegraph)

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Doctors bid to cure 13-year-old Burnley girl’s crippling spine condition

Lancashire Telegraph: WAITING FOR SURGERY Jessica Ingham and two X-rays  showing  a big deterioration in the condition of her spine in just six months WAITING FOR SURGERY Jessica Ingham and two X-rays showing a big deterioration in the condition of her spine in just six months

A TEENAGER is set to undergo a major operation to try to save her from a painful, crippling condition which could eventually kill her.

Thirteen-year-old Jessica Ingham suffers from scoliosis, otherwise known as curvature of the spine and has to spend 21 hours a day wearing a body brace.

The inherited condition was diagnosed two years ago.

Jessica’s spine has twisted into an ‘s’ shaped curve, causing her rib cage to move out of position and her hip to disappear.

Without treatment the curves will only increase leading to severe disability, organ damage and in extreme cases death.

Jessica, now 13, who lives in Olivant Street, Burnley, needs the brace to slow down the movement of her spine.

But the only real way she can stop it from moving further is to undergo the operation, in which two metal rods will be inserted into her back to straighten her spinal column.

“I am absolutely petrified,” said the Blessed Trinity RC School pupil.

“One of the worst things about my condition is that I can’t wear the clothes I want to. A lot of my friends wear nice dresses and cut off tops but when I’m wearing my brace you just see it all the time.

"Another problem I have, is pain, after standing up for long periods of time as it causes my back to ache.

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“I also have to be really careful about taking part in certain sports.

“I knew that one day I would have to have this operation, but when I was first told I could have it, I really didn’t want it.

“But every person who visited my house tried to talk me round, and eventually I realised I was better to get it out of the way before my GCSEs.”

Jessica is expected to undergo the operation,that will see her off school for more than three months, in September in Sheffield.

The youngster’s mum Jenette, who underwent the same operation 20 years ago after inheriting the condition from her mother, is now trying to raise awareness of the condition that affects one in every 2000 people.

The beautician who owns Elegant Nails and Beauty, in Padiham Road, Burnley, said: “Nobody seems to know about this condition until it affects them.

“In the Gannow ward of Burnley alone I know of five youngsters who are living with the condition.

“The condition does not usually manifest itself until a child is about 11 years old.

“With having the condition myself I was very paranoid about keeping my eye on Jessica and making sure she was diagnosed as soon as possible.

“When we were trying to get help for Jess, her spine moved 25 degrees in just three months.”

Ollie Murs fan Jessica began displaying symptoms of her condition shortly after turning 11.

Initially, doctors couldn’t diagnose the condition as her X-rays failed to highlight the tell-tale signs.

But her mum and dad Kevin, were so concerned they persevered and asked for a second opinion.

A short time later Jessica’s condition was diagnosed and she was referred to a consultant at Manchester Children’s Hospital.

Jenette said: “I discovered on the internet that some hospitals were using back braces to try and slow down the spines movement. But in Manchester they don’t think they work and so not prescribe them.

“I was really unhappy with this and found out that Sheffield Hospital does use these braces, so I insisted Jessica should be treated there.

“And I am so glad I did, in the three months we were waiting for a brace to be made, Jessica’s spine moved 25 degrees.

“We are now waiting for the date for her operation, we hope it will hopefully change her life for the better and enable her to do normal things and wear normal clothes which is very important to teenage girls.”

Jessica’s little sister Olivia, eight, must now be monitored for signs of the condition.

The family are now asking for donations to the Scoliosis Association UK, SAUK, so more research can be done into the condition.

Donations can be handed in to Elegant Nails and Beauty, in Padiham Road, Burnley.

Comments (10)

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1:42pm Tue 24 Apr 12

happycyclist says...

Best wishes. Hope everything goes well.
Best wishes. Hope everything goes well. happycyclist
  • Score: 1

4:21pm Tue 24 Apr 12

Mothernature says...

Good luck with the operation Jessica. I'm sure everything will turn out well.
Good luck with the operation Jessica. I'm sure everything will turn out well. Mothernature
  • Score: 1

8:02pm Tue 24 Apr 12

burnleyiter says...

My Daughter was diagnosed with scoliosis 4 years ago when she was 14, fortunately her condition has stabilised and she doesn't need any further treatment. Good luck Jessica once the operation is over you will be able to live life to the full!
My Daughter was diagnosed with scoliosis 4 years ago when she was 14, fortunately her condition has stabilised and she doesn't need any further treatment. Good luck Jessica once the operation is over you will be able to live life to the full! burnleyiter
  • Score: 1

6:05am Wed 25 Apr 12

Yummymummy37 says...

My 15 year old daughter is a year 11 pupil at Blessed Trinity and has returned to school full time this week after having 3 months off. Danielle had the 10 hour surgery in January as she too had a severe curvature of the spine. Danielle's spine had an 80 degree curve and now she has the metal rods in and it's amazing. I am so very proud of Danielle. Having 3 months out in her final year has been huge but she has worked so hard and is now on target for fabulous grades - she even has a place to do dance at college. Wishing Jessica all the best - she should speak to Danielle!! It has made such a difference to Danielle's life and future. I too have X-ray pics and believe me the before and after pics blow your mind!!!!! Big hugs xx
My 15 year old daughter is a year 11 pupil at Blessed Trinity and has returned to school full time this week after having 3 months off. Danielle had the 10 hour surgery in January as she too had a severe curvature of the spine. Danielle's spine had an 80 degree curve and now she has the metal rods in and it's amazing. I am so very proud of Danielle. Having 3 months out in her final year has been huge but she has worked so hard and is now on target for fabulous grades - she even has a place to do dance at college. Wishing Jessica all the best - she should speak to Danielle!! It has made such a difference to Danielle's life and future. I too have X-ray pics and believe me the before and after pics blow your mind!!!!! Big hugs xx Yummymummy37
  • Score: 1

8:13pm Wed 25 Apr 12

Lottie27 says...

Good luck with the operation Jessica...sounds like you have fab parents taking good care of you! Nice comments for you above too, it would probably be a good idea to talk to someone who has recently gone through the same x
Good luck with the operation Jessica...sounds like you have fab parents taking good care of you! Nice comments for you above too, it would probably be a good idea to talk to someone who has recently gone through the same x Lottie27
  • Score: 1

11:12pm Thu 3 May 12

Proudmumof2 says...

Yummymummy37 wrote:
My 15 year old daughter is a year 11 pupil at Blessed Trinity and has returned to school full time this week after having 3 months off. Danielle had the 10 hour surgery in January as she too had a severe curvature of the spine. Danielle's spine had an 80 degree curve and now she has the metal rods in and it's amazing. I am so very proud of Danielle. Having 3 months out in her final year has been huge but she has worked so hard and is now on target for fabulous grades - she even has a place to do dance at college. Wishing Jessica all the best - she should speak to Danielle!! It has made such a difference to Danielle's life and future. I too have X-ray pics and believe me the before and after pics blow your mind!!!!! Big hugs xx
Thank you for your comments, this is Jessica's mum, I have asked if jess would like to talk to danielle but she says no, ink she is a bit shy or perhaps feels a little strange but thank you so much for the offer. I wouldnd mind talking o you though, if you wouldnt mind....I know I have been through the operation but I have never been through it as a mum, I'm probably more scared than jess! maybe Facebook?
Thanks again for everybody's kind words n support it does mean a lot x
[quote][p][bold]Yummymummy37[/bold] wrote: My 15 year old daughter is a year 11 pupil at Blessed Trinity and has returned to school full time this week after having 3 months off. Danielle had the 10 hour surgery in January as she too had a severe curvature of the spine. Danielle's spine had an 80 degree curve and now she has the metal rods in and it's amazing. I am so very proud of Danielle. Having 3 months out in her final year has been huge but she has worked so hard and is now on target for fabulous grades - she even has a place to do dance at college. Wishing Jessica all the best - she should speak to Danielle!! It has made such a difference to Danielle's life and future. I too have X-ray pics and believe me the before and after pics blow your mind!!!!! Big hugs xx[/p][/quote]Thank you for your comments, this is Jessica's mum, I have asked if jess would like to talk to danielle but she says no, ink she is a bit shy or perhaps feels a little strange but thank you so much for the offer. I wouldnd mind talking o you though, if you wouldnt mind....I know I have been through the operation but I have never been through it as a mum, I'm probably more scared than jess! maybe Facebook? Thanks again for everybody's kind words n support it does mean a lot x Proudmumof2
  • Score: 0

11:12pm Thu 3 May 12

Proudmumof2 says...

Yummymummy37 wrote:
My 15 year old daughter is a year 11 pupil at Blessed Trinity and has returned to school full time this week after having 3 months off. Danielle had the 10 hour surgery in January as she too had a severe curvature of the spine. Danielle's spine had an 80 degree curve and now she has the metal rods in and it's amazing. I am so very proud of Danielle. Having 3 months out in her final year has been huge but she has worked so hard and is now on target for fabulous grades - she even has a place to do dance at college. Wishing Jessica all the best - she should speak to Danielle!! It has made such a difference to Danielle's life and future. I too have X-ray pics and believe me the before and after pics blow your mind!!!!! Big hugs xx
Thank you for your comments, this is Jessica's mum, I have asked if jess would like to talk to danielle but she says no, ink she is a bit shy or perhaps feels a little strange but thank you so much for the offer. I wouldnd mind talking o you though, if you wouldnt mind....I know I have been through the operation but I have never been through it as a mum, I'm probably more scared than jess! maybe Facebook?
Thanks again for everybody's kind words n support it does mean a lot x
[quote][p][bold]Yummymummy37[/bold] wrote: My 15 year old daughter is a year 11 pupil at Blessed Trinity and has returned to school full time this week after having 3 months off. Danielle had the 10 hour surgery in January as she too had a severe curvature of the spine. Danielle's spine had an 80 degree curve and now she has the metal rods in and it's amazing. I am so very proud of Danielle. Having 3 months out in her final year has been huge but she has worked so hard and is now on target for fabulous grades - she even has a place to do dance at college. Wishing Jessica all the best - she should speak to Danielle!! It has made such a difference to Danielle's life and future. I too have X-ray pics and believe me the before and after pics blow your mind!!!!! Big hugs xx[/p][/quote]Thank you for your comments, this is Jessica's mum, I have asked if jess would like to talk to danielle but she says no, ink she is a bit shy or perhaps feels a little strange but thank you so much for the offer. I wouldnd mind talking o you though, if you wouldnt mind....I know I have been through the operation but I have never been through it as a mum, I'm probably more scared than jess! maybe Facebook? Thanks again for everybody's kind words n support it does mean a lot x Proudmumof2
  • Score: 0

12:42am Fri 4 May 12

Yummymummy37 says...

Any advice , support or just hearing how it was for me I would gladly share. It has been a very emotional time (can't lie) but SO worth it and to be honest I cannot believe the progress that Danielle has made and Jess will too! Facebook me - Dawn-Marie Nicholls. I will leave my details with Christine (reception) at school so u can call / email anytime. Danielle leaves in 3 weeks (can't believe it) but we would both love to hear how well Jess is doing after her op! Danielle is even a few inches taller .. New clothes ... And prom dress!!! Ha xx
Any advice , support or just hearing how it was for me I would gladly share. It has been a very emotional time (can't lie) but SO worth it and to be honest I cannot believe the progress that Danielle has made and Jess will too! Facebook me - Dawn-Marie Nicholls. I will leave my details with Christine (reception) at school so u can call / email anytime. Danielle leaves in 3 weeks (can't believe it) but we would both love to hear how well Jess is doing after her op! Danielle is even a few inches taller .. New clothes ... And prom dress!!! Ha xx Yummymummy37
  • Score: 0

8:36am Fri 4 May 12

Proudmumof2 says...

Aww the prom, that must be such an exciting time for Danielle, being tall and straight and wearing the dress she wants, I hope she has an amazing time. Thank you I will be in touch xx
Aww the prom, that must be such an exciting time for Danielle, being tall and straight and wearing the dress she wants, I hope she has an amazing time. Thank you I will be in touch xx Proudmumof2
  • Score: 0

2:17pm Sun 6 May 12

Proudmumof2 says...

Thank you for everyone's kind comments, jessica's cousin is doing a sky dive to raise money for scoliosis research. If anyone would like to donate please visit page www.justgiving.com/e
mmalou skydive. Thank you x
Thank you for everyone's kind comments, jessica's cousin is doing a sky dive to raise money for scoliosis research. If anyone would like to donate please visit page www.justgiving.com/e mmalou skydive. Thank you x Proudmumof2
  • Score: 0

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