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Family of Darwen man call for hospital answers

THE family of a 27-year-old teaching assistant who died from cancer have lodged an official complaint over his treatment at Royal Blackburn Hospital.

Paul Nixon died three months after being diagnosed with a rare sarcoma tumour.

His parents Lynn and David are demanding an apology after complaining about the hospital’s failure to detect his condition earlier and the nursing care he received.

In a letter to the family, hospital bosses said action would be taken over concerns about the attitude of some nurses on Paul’s ward.

A meeting has also been offered between senior staff and clinicians with the Nixon family to discuss their concerns.

Lynn said: “Paul was a kind and caring lad who never had a bad word to say about anybody. He was loving, loyal and had a funny sense of humour.”

David said: “We’ve not got the answers we asked for. We’re asking for the answers to the real questions.”

Paul, who worked at his former school, Crosshills, in Blackburn, discovered a growth on his leg in mid-July last year.

Together with Lynn and David, of Huntingdon Drive, Darwen, he went to see his GP.

His leg then continued to swell and Paul, who had moderate learning difficulties, was admitted to the Royal Blackburn Hospital on July 22 after complaining it was sore.

It was initially thought that the growth was an abcess, so an MRI scan was not carried out, and he was discharged two days later.

When a scan was done on August 12, it was discovered he actually had a sarcoma tumour, an abnormal growth in the connective tissues.

After Paul’s death in November, the family complained that: * He should have had an MRI on his first admission; * Despite requests to speak to a doctor after the scan Paul and his mum had to wait until late the next morning to be told he had cancer.

* When his doctor recommended Paul be urgently referred to a specialist the family heard nothing for a week. Eventually Mrs Nixon managed to contact the right consultant, but he had no knowledge of Paul.

* There was a lack of knowledge of sarcomas at the hospital, which made it difficult for Paul to be properly cared for.

* When his father went to visit, nursing staff were unaware Paul was being cared for on the ward.

* One member of staff was rude and unhelpful while nursing staff failed to introduce themselves to Paul and his family.

In the hospital’s response to the complaint, the trust accepted there were issues with the attitude of some nurses and staff had been spoken to.

The letter, signed by chief executive Mark Brearley, said: “I am extremely sorry that you felt it necessary to complain at such a distressing time and can only only apologise to you and your family for any anxiety that could have been avoided had there been better communication from both staff groups.”

It also said that there had appeared to be some improvement when Paul was initially admitted into hospital and placed on antibiotics, although the family disputes this.

The response also left the Nixon family dissatisfied as it did not refer to several of their other complaints.

A spokeswoman for the hospital said a meeting was being arranged between senior staff and clinicians and the Nixon family to discuss their concerns.

But Mrs Nixon said she wanted to meet with someone higher up.

She said: “I’ve stated I don’t want a meeting with those people, I want someone more senior.

“I am taking advice from The Independent Complaints Advocacy Service over who to arrange a meeting with.

“All I really want is an apology and for training to be done around sarcomas so staff know what they are dealing with.”

The family have said they will be holding a number of fundraisers this year to raise awareness of sarcomas.

Paul’s sister, Leah Nixon, will be doing a sponsored skydive later in the year.

Comments(10)

Malthus says...
9:10am Sun 12 Feb 12

Sadly such occurrences will only increase when Cameron's overhaul of the NHS takes place. In five years time an MRI scan for a non-private patient will be unheard of.

living the end times in BB1 says...
9:31am Sun 12 Feb 12

RIP Paul.
Our thoughts are with your family at such a distressing time.
I do hope the NHS act quickly regarding your concerns over the care Paul recieved.

Elysiumfire says...
11:03am Sun 12 Feb 12

My sincere condolences to the family of Paul Nixon, I truly hope you receive the 'real' facts, and not a squirming whitewash of a excuse in damage control.

The week before Christmas we had to admit our mother to Blackburn Royal Hospital after discovering her on the floor of her flat.
Our Mother had been diagnosed with Dementia a year earlier, but was probably in development a number of years prior to the diagnosis. My brother and I could certainly see its effect upon her and her short-term memory.
Our mother did not come out of the Hospital, dying in the early hours of 16th Janauary.
For most of her stay in the Hospital, the nurses on the ward were brilliant, but the doctors were very sadly lacking. In the whole of the five weeks she was there, my brother and I saw 3 doctors, two of whom were connected to my mother's case, and one, whom appeared on the night she died.
It was only towards the end of the third week that I was interviewed by the first doctor I spoke with, only to be told that my mother had cancer, that it was severely advanced and incurable, and that only palliative care could be given.
Three weeks for doctors to discover her cancer, even though she deteriorated right before eveybody's eyes, was quite simply an abrogation of concern, care, and medical investigation on the part of the doctors. It was only from elevated chemicals found in her blood and urine that a second doctor - who took over my mother's case - was a ultra sound scan administered, and the subsequent finding of the cancer.
As far as I am concerned, what I believe in myself, is that the doctors failed in their duty, whereas the nurses of the ward, were quite simply brilliant! That was my experience of Blackburn Royal Hospital.

Saywhatyoysee says...
11:26am Sun 12 Feb 12

Totally agree with Malthus - but Id like to know how many complaints about poor clinical care in this hospital do we have to read before something is done about it?

mavrick says...
6:21pm Sun 12 Feb 12

Malthus wrote:
Sadly such occurrences will only increase when Cameron's overhaul of the NHS takes place. In five years time an MRI scan for a non-private patient will be unheard of.
My condolonces to the family, i to have had simmilar problems with RBI and the Royal preston. like other posters i found the nursing staff were good, despite being thin on the ground. the big problem is communication. I wont repeat my story on here but i will say this, you would not believe it even if you saw it with your own eyes. i am still considering whether to write a complaint or will I just be wasting paper. I am also loath to complain about hospitals that have kept me alive.
I would warn people to be aware of the weasel wording from the tories on the NHS. They keep saying it will be free at the point need. but i wonder if they are going to charge a fortune for the aftercare?
The cuts in the NHS are biting at the frontline despite what the government says. I am afraid things will only get worse.

mavrick says...
6:22pm Sun 12 Feb 12

Malthus wrote:
Sadly such occurrences will only increase when Cameron's overhaul of the NHS takes place. In five years time an MRI scan for a non-private patient will be unheard of.
My condolonces to the family, i to have had simmilar problems with RBI and the Royal preston. like other posters i found the nursing staff were good, despite being thin on the ground. the big problem is communication. I wont repeat my story on here but i will say this, you would not believe it even if you saw it with your own eyes. i am still considering whether to write a complaint or will I just be wasting paper. I am also loath to complain about hospitals that have kept me alive.
I would warn people to be aware of the weasel wording from the tories on the NHS. They keep saying it will be free at the point need. but i wonder if they are going to charge a fortune for the aftercare?
The cuts in the NHS are biting at the frontline despite what the government says. I am afraid things will only get worse.

Kaz1961 says...
1:41pm Tue 14 Feb 12

My thoughts are with the Nixon family on their sad loss. No one expects to bury their own children.

I know only too well through experience with my Mums cancer diagnosis that The Royal Blackburn is wholly unequipped to deal with treating cancer. I personally feel everyone should be referred to Christies which is a designated cancer hospital.

We as a family have nothing positive to say about Royal Blackburn or Burnley Hospital they are totally incompetent and dithered about her treatment which resulted in Mums death in 2010.

Thankfully I dont live in Blackburn anymore so no longer have to use either of these hospitals.

I sincerely hope the Nixons get the answers to the questions theyve asked - I wont hold my breath though.

Karen

Kaz1961 says...
1:41pm Tue 14 Feb 12

My thoughts are with the Nixon family on their sad loss. No one expects to bury their own children.

I know only too well through experience with my Mums cancer diagnosis that The Royal Blackburn is wholly unequipped to deal with treating cancer. I personally feel everyone should be referred to Christies which is a designated cancer hospital.

We as a family have nothing positive to say about Royal Blackburn or Burnley Hospital they are totally incompetent and dithered about her treatment which resulted in Mums death in 2010.

Thankfully I dont live in Blackburn anymore so no longer have to use either of these hospitals.

I sincerely hope the Nixons get the answers to the questions theyve asked - I wont hold my breath though.

Karen

Kaz1961 says...
1:41pm Tue 14 Feb 12

My thoughts are with the Nixon family on their sad loss. No one expects to bury their own children.

I know only too well through experience with my Mums cancer diagnosis that The Royal Blackburn is wholly unequipped to deal with treating cancer. I personally feel everyone should be referred to Christies which is a designated cancer hospital.

We as a family have nothing positive to say about Royal Blackburn or Burnley Hospital they are totally incompetent and dithered about her treatment which resulted in Mums death in 2010.

Thankfully I dont live in Blackburn anymore so no longer have to use either of these hospitals.

I sincerely hope the Nixons get the answers to the questions theyve asked - I wont hold my breath though.

Karen

Letter2u says...
9:50am Sun 26 Feb 12

My thoughts are with the Nixon family and i truly feel for their loss.
I too had a terrible experience about ward C9 where the lack of care was beyond comprehension.
I did eventually get to meet with a consultant and matron after seeking advice and got a couple of apolgoises but really i should have took this much further but my relative died and my grief took over and i coudn't carry it out.
Great shame that one ward can let a whole hospital down as i attend RBH on a regular basis and i get the best care and can't praise the staff enough.
I hope the Nixon's take this to the top for Paul's sake.

click2find

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