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New wheelchair joy for Blackburn girl
7:20pm Friday 2nd May 2014 in News
A FUNDRAISING little girl with a rare enzyme disorder has been promised the wheelchair she so desperately needs for a comfortable and safe life at high school by the charity Whizz-Kidz.
Ten-year-old Enola Halleron from Blackburn will never grow more than a metre tall due to having mucopolysaccharidoses (MPS), a condition that among other things, causes skeletal growth problems.
The Feniscowles primary school pupil and her mother, Donna, began fundraising for a £7,000 electric wheelchair in March, after it became clear to them that the NHS wheelchair that she had would not suit Enola as she got older and began her high school life.
But after Enola’s efforts were featured in the Lancashire Telegraph, charity Whizz-Kidz came to her aid and said that they would be able to give her the wheelchair of her dreams by the time she starts at St Bede’s in September next year.
Donna Halleron, who works as a part time teacher in Burnley, said: “I had heard that the waiting list for a wheelchair from Whizz-Kidz was over two years long, so I just thought we’d have no chance.
“I didn’t realise that it depended on where you lived and so this is just brilliant news.
“They have guaranteed that Enola will have her wheelchair by the time she starts high school and it’s just fantastic.”
Whizz-Kidz provides disabled children and young people with vital mobility equipment, opportunities to meet each other, and training to help them gain skills for the future.
They have helped more than 19,000 disabled children since 1990 and between 2009 and last April, they helped 117 children in Lancashire.
Whizz-Kidz allocate an amount of funding to an region, depending on the level of need and while a family can make a contribution towards their child’s equipment, it is not expected.
Donna says that she and Enola will keep their fundraising page, Lolo’s Wheels, open as they would like to contribute to their wheelchair.
Any money left over will be put towards the cost of a vehicle large enough to fit the wheelchair and any other money will be donated to the MPS Society, a charity the Halleron’s have supported for a number of years.
Adam Reed, from the Children’s Services team at Whizz-Kidz, said: “We are now in touch with Donna, and hope to support Enola to get the wheelchair she needs to lead an active and independent life as she begins this next stage by starting secondary school.
“We are delighted to be in a position to help Enola and her family, but we estimate there are still over 70,000 disabled children across the UK who lack the vital equipment they need to have a chance of a childhood.”
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